Mental Health Awareness Month: Is it OCD or ‘Just Autism’?

For Mental Health Awareness Month, clinical psychologist Judy Reaven, of the Autism Treatment Network, shares some guidance on OCD.

It is not uncommon for some children with Autism Spectrum Disorder to show an intense interest or preoccupation with an object, toy, video, task, etc.  It is sometimes difficult for parents to distinguish if the preoccupation is a characteristic of autism or a behavior associated with Obsessive Compulsive Disorder (OCD).  Children on the autism spectrum can also receive an OCD diagnosis.   Dr. Judy Reaven gives a nice explanation in the blog below to help you determine whether or not to have your child evaluated for OCD.  

Dr. Reaven is a clinical psychologist and associate professor of The Children’s Hospital and the University of Colorado School of Medicine, in Denver. Both institutions are part of the Autism Speaks Autism Treatment Network

A number of psychological disorders – including obsessive compulsive disorder, or OCD – frequently co-occur with autism. But it’s also true that some symptoms of autism overlap with those of other disorders such as OCD. So it can be difficult to distinguish those that are related to an individual’s autism from those that are part of another condition.

As its name suggests, OCD is characterized by obsessions or compulsions or both. Obsessions are recurrent and persistent thoughts that are both intrusive and unwanted. They cause significant distress and ignoring them can be difficult. Often, individuals with obsessions try to manage the discomfort associated with the thoughts by performing a particular action. This is the “compulsive” part of the disorder. Compulsions are time-consuming, repetitive behaviors that an individual feels driven to perform in response to an obsessive thought.

Obsessions vs Special Interests
OCD is often confused with the special interests or preoccupations characteristic of autism. However, OCD is less about obsessive interests, which can be quite enjoyable. It’s more about behaviors that an individual feels driven to perform to reduce great distress or anxiety.

It’s not possible to be certain what’s going on with an individual without a full evaluation. I recently had a discussion with a mother of a 25-year-old man with autism who had concerns about her son. The woman told me that though her son has always had repetitive behaviors, lately he had been wanting to redo things such as getting dressed or showering right after they were done. He would also insist they backtrack if they drove through a different neighborhood. I noted two key observations that made me think that the symptoms she described could be OCD.

First, she noted a significant change from her child’s past autism behaviors. Second, she seemed to describe an increase in the severity of his symptoms. And overall, her description of her son’s behaviors was consistent with a common OCD symptom – getting stuck on something because it doesn’t feel “just right.”

In order to make it “right,” a person with OCD may feel compelled to “do over” the behavior. In this young man’s case, this could include re-doing a shower or getting dressed. This also seems to describe his need to drive through his neighborhood the “right way.”

We have effective therapies! 
Whether or not an individual’s new symptoms meet criteria for an official diagnosis of OCD, treatment can help. In particular, we have a wealth of research showing that cognitive-behavior therapies can help individuals with autism manage OCD symptoms. (Editor’s note: Dr. Reaven is among the pioneering researchers who’ve adapted cognitive-behavioral therapies for individuals with autism.)

These therapies include helping the person become aware of obsessive thoughts and compulsive behaviors and label them as such. For instance, an individual would learn to recognize the physical symptoms of distress related to his or her obsessive thoughts. In cognitive-behavioral therapy, we explain that thoughts can influence physical symptoms and vice versa.

Importantly, we provide individuals with useful tools for managing problematic symptoms. These might include taking deep breaths and mentally repeating a positive coping statement such as “This is just OCD. I can handle it.”

For OCD, a very important part of cognitive-behavioral therapy is called exposure/response prevention.  In this approach, the goal is for the individual to face the problem situation without engaging in the associated compulsive behavior. Generally, this exposure is done gradually. In other words, the therapist would help the individual face his fear “a little at a time.”

For the young man discussed above, exposure/response prevention for backtracking through the neighborhood might involve the goal of deliberately driving the “wrong” way, without the option of backtracking. He might need to slowly work his way up to this final step by practicing the method in a less-distressing situation.

If you feel your child may be showing symptoms of OCD, I recommend that you find a psychologist, social worker or psychiatrist with experience working with individuals who have autism and OCD. A good place to start is one of the centers within Autism Speaks Autism Treatment Network. Even if you’re distant from one of these centers, the closest one may be able to help you find a specialist in your community.

Also see “Treatment for Associated Psychiatric Conditions” on the Autism Speaks website.

Got more questions? Send them to GotQuestions@autismspeaks.org. 

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